Nicholas Zahorcak was born in late 1996 and diagnosed shortly after birth with the Recessive Dystrophic form of Epidermolysis Bullosa.
Epidermolysis Bullosa, or EB, is a rare genetic skin disorder that causes the skin to be so fragile it can be easily injured, causing painful blisters.
OUT NOW! Story of a mother's journey from the stillbirth of her first baby, to the birth and first 18 years of life of her son Nicky with Recessive Dystrophic EB.
Photos can speak a thousand words. What better way to tell Nicky's story than with photos? While the book has many photos, here's a few that didn't make the final cut but are just as good. Included are also photos of his big brother in heaven Alex, and his little brother Connor.
Read a few excerpts from the book, one about Alex's stillbirth, and a couple about the hardships of Nicky's life and care. Dealing with an ultra-orphan disorder, one of which very few Doctors are even aware of, is the biggest challenge, find happiness in the midst of sorrow the ultimate goal.
Silvia Corradin shares her journey through grief and incredible challenges. From Insurance Companies refusal to cover the most basic needs for any EB patient to Silvia’s trying to make sense of her ongoing struggles. Follow her journey as she tries her hardest to answer the question "Why me?"