About the Author
My name is Silvia, I am a wife & mom to 3 boys, 1 in heaven, 2 on earth. I was born and raised in Italy and I moved to the US to study English while I lived with my aunt, and as the story goes… one thing led to another and I never returned. I do miss Italy and my family dearly, we do plan to retire there to be among family.
I am a graphic artist, photographer, author, webmaster, blogger and more. I hold a double degree in Graphic Design & Digital Photography from Antelope Valley College and I love what I do.
I dedicate my work and everything I have done and I have become to my son, Alex, who was stillborn at full term. He is and will always be my “Sleeping Angel”. You can read the story of his short life in my book “Losing Alex”, which is now available for the Kindle and on paperback both at Amazon and at Lulu.com
Alex’s little brother Nicky was born 18 months later with a devastating skin condition called Epidermolysis Bullosa (Recessive Dystrophic). His skin is as fragile as a butterfly’s wing which can blister at the slightest touch — even from my cuddles. Normal day-to-day life causes constant pain and scarring, which leads to disfigurement and disability. If you would like more information about this very rare condition, please visit my website @ebinfoworld.com. “Butterfly Child” is essentially a book about his life. I start the book with Alex’s story, which I released separately in an effort to help moms facing similar situations.
I was also lucky enough to have a healthy son, Connor, and the fact that he’s normal and healthy is something I never, ever take it for granted. I truly thank my lucky stars every single day that I look into his eyes.
But that’s not all. For several years I wrote a column for parents of special need children called “Special Mommy Chronicles”. In 2006 I turned that column into a book available directly from the Publisher and also at Amazon &Barnes & Noble (for both paperback & Nook) and it’s also available for the Kindle and in the iBookstore in iTunes.
Another book I published is a series of stories of families called “Living with Epidermolysis Bullosa”. That book is also available directly from the Publisher and also as a paperback at both Amazon (for both paperback & Kindle) & Barnes & Noble and is also available in the iBookstore in iTunes.
Thank you for visiting! Here’s a video I made where I talk about what bandages I use on Nicky: